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17. Directory of Digestive 
Diseases Organizations for Patients

 

Alagille Syndrome Alliance
10630 SW. Garden Park Place
Tigard, OR 97223
Phone: 503–639–6217
Email: alagille@earthlink.net
Internet: www.alagille.org

American Celiac Society—
Dietary Support Coalition
P.O. Box 23455
New orleans, LA 70183
Phone: 504–737–3293
Fax: 504–737–4283
Email: amerceliacsoc@netscape.net

American Dietetic Association (ADA)
120 South Riverside Plaza
Chicago, IL 60606
Phone: 1–800–366–1655 or
312–899–0040
Fax: 312–899–4739
Email: hotline@eatright.org
Internet: www.eatright.org

American Hemochromatosis Society Inc. (AHS)
4044 West Lake Mary Boulevard, 104, PMB 416
Lake Mary, FL 32746–2012
Phone: 1–888–655–4766 or
407–829–4488
Fax: 407–333–1284
Email: mail@americanhs.org
Internet: www.americanhs.org

 

American Liver Foundation (ALF)
75 Maiden Lane, Suite 603
New York, NY 10038–4810
Phone: 1–800–GO–LIVER (465–4837),
1–888–4HEP–USA (443–7872), or
212–668–1000
Fax: 212–483–8179
Email: info@liverfoundation.org
Internet: www.liverfoundation.org

American Porphyria Foundation
P.O. Box 22712
Houston, TX 77227
Phone: 713–266–9617
Fax: 713–871–1788
Email: porphyrus@aol.com
Internet: http://www.porphyriafoundation.com

Association of Gastrointestinal Motility 
Disorders Inc. (AGMD) (formerly American 
Society of Adults With Pseudo-Obstruction Inc.)
11 North Street
Lexington, MA 02420
Phone: 781–861–3874
Fax: 781–861–7834
Email: agmdinc@aol.com
Internet: www.agmd-gimotility.org
International Foundation for Functional 
Gastrointestinal Disorders (IFFGD) Inc.
P.O. Box 170864
Milwaukee, WI 53217–8076
Phone: 1–888–964–2001 or
414–964–1799
Fax: 414–964–7176
Email: iffgd@iffgd.org
Internet: www.iffgd.org

Intestinal Disease Foundation
Landmarks Building, Suite 525
100 West Station Square Drive
Pittsburgh, PA 15219
Phone: 1–877–587–9606 or
412–261–5888
Fax: 412–471–2722
Email intdis@stargate.net
Internet: www.intestinalfoundation.org

Iron Disorders Institute
P.O. Box 2031
Greenville, SC 29602
Phone: 1–888–565–IRON (4766) or
864–292–1175
Fax: 864–292–1878
Email: publications@irondisorders.org
Internet: www.irondisorders.org

Iron Overload Diseases Association Inc.
433 Westward Drive
North Palm Beach, FL 33408–5123
Phone: 561–840–8512
Fax: 561–842–9881
Email: iod@ironoverload.org
Internet: www.ironoverload.org

National Association For Continence (NAFC)
(formerly Help for Incontinent People [HIP])
P.O. Box 1019
Charleston, SC 29402–1019
Phone: 1–800–BLADDER or
843–377–0900
Fax: 843–377–0905
Email: memberservices@nafc.org
Internet: www.nafc.org

 

National Foundation for Celiac Awareness
124 South Maple Street
Ambler, PA 19002
Phone: 215–325–1306
Fax: 215–283–2335
Internet: www.celiacawareness.org

National organization for Rare Disorders Inc. (NorD)
55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813–1968
Phone: 1–800–999–6673 or
203–744–0100
Fax: 203–798–2291
Email: orphan@rarediseases.org
Internet: www.rarediseases.org

Oley Foundation for Home Parenteral and Enteral Nutrition (HomePEN)
214 Hun Memorial, A-28
Albany Medical Center
Albany, NY 12208–3478
Phone: 1–800–776–OLEY (6539) or
518–262–5079 (outside U.S.)
Fax: 518–262–5528
Email: bishopj@mail.amc.edu
Internet: www.oley.org

Pediatric/Adolescent Gastroesophageal Reflux Association Inc. (PAGER)
P.O. Box 1153
Germantown, MD 20875–1153
Phone: 301–601–9541
Fax: 630–982–6418
Email: gergroup@aol.com
Internet: www.reflux.org

Pull-thru Network
2312 Savoy Street
Hoover, AL 35226
Phone: 205–978–2930
Email: info@pullthrough.org
Internet: www.pullthrough.org
Reach Out for Youth with Ileitis and Colitis Inc.
84 Northgate Circle
Melville, NY 11747
Phone: 631–293–3102
Fax: 631–293–3103
Email: reachoutforyouth@reachoutforyouth.org
Internet: www.reachoutforyouth.org

The Simon Foundation for Continence
P.O. Box 815
Wilmette, IL 60091
Phone: 1–800–23–SIMON or 847–864–3913
Fax: 847–864–9758
Internet: www.simonfoundation.org

TEF-VATER International
15301 Grey Fox Road
Upper Marlboro, MD 20772
Phone: 301–952–6837
Fax: 301–952–9152
Email: info@tefvater.org
Internet: www.tefvater.org

United Ostomy Association Inc. (UOA)
19772 MacArthur Boulevard, Suite 200
Irvine, CA 92612–2405
Phone: 1–800–826–0826 or 949–660–8624
Fax: 949–660–9262
Email: info@uoa.org
Internet: www.uoa.org

Weight-control Information Network (WIN)
1 WIN Way
Bethesda, MD 20892–3665
Phone: 1–877–946–4627 or 202–828–1025
Fax: 202–828–1028
Email: win@info.niddk.nih.gov
Internet: www.niddk.nih.gov/health/nutrit/nutrit.htm
Wilson’s Disease Association International
1802 Brookside Drive
Wooster, OH 44691
Phone: 1–800–399–0266 or 330–264–1450
Fax: 509–575–6418
Email: wilsonsdiseaseassoc@yahoo.com
Internet: www.wilsonsdisease.org