1. Description |
1.1 |
Terminology |
1.2 |
Definition |
1.3 |
Epidemiology |
1.3.1 |
Incidence and Prevalence |
1.4 |
Course and Prognosis |
1.4.1 |
Asthma |
1.4.2 |
Cancer |
1.4.3 |
Cystic Fibrosis |
1.4.4 |
Diabetes Mellitus |
1.4.5 |
Sickle Cell Disease |
1.5 |
Differential Diagnosis |
1.6 |
Comorbidities |
1.6.1 |
Asthma |
1.6.2 |
Cancer |
1.6.3 |
Cystic Fibrosis |
1.6.4 |
Diabetes Mellitus |
1.6.5 |
Sickle Cell Disease |
1.7 |
Diagnostic Procedures and Documentation |
2. Theories and Models of the Disorder |
2.1 |
Risk Factors |
2.1.1 |
Disease and Disability Parameters |
2.1.2 |
Genetic Disorders |
2.1.3 |
Intrauterine Growth Retardation, Prematurity, and Low Birth Weight |
2.1.4 |
Teratogens |
2.1.5 |
Disease Severity |
2.1.6 |
Functional Independence |
2.1.7 |
Psychosocial Stressors |
2.2 |
Resistance Factors |
2.2.1 |
Intrapersonal Factors |
2.3 |
Social-Ecological Factors |
2.3.1 |
Family Functioning |
2.3.2 |
Financial Resources |
2.3.3 |
Stress Processing |
2.4 |
Applying the Models to Sickle Cell Disease |
3. Diagnosis and Treatment Indications |
3.1 |
Caregiver and Child Interviews |
3.2 |
Behavior |
3.3 |
Cognition |
3.4 |
Affect |
3.5 |
Adherence |
3.6 |
Stress and Coping |
3.7 |
Quality of Life |
3.8 |
Family Variables |
3.9 |
Summary |
4. Treatment |
4.1 |
Methods of Treatment |
4.1.1 |
Behavior Therapy |
4.1.2 |
Cognitive-Behavior Therapy |
4.1.3 |
Behavioral and Cognitive-Behavioral Interventions— Empirical Support and Clinical Trials |
4.1.4 |
Psychological Adjustment |
4.1.5 |
Psychosocial Factors, Coping and Pain Management |
4.1.6 |
Adherence |
4.1.7 |
Family Systems Interventions |
4.1.8 |
Parent Training |
4.1.9 |
Group Therapy |
4.1.10 |
Peer Group Interventions |
4.1.11 |
Peer Support Groups |
4.1.12 |
Electronic Peer Support Groups |
4.1.13 |
Self-Regulatory Skill Training, Self-Management, and Psychoeducational Strategies |
4.2 |
Mechanisms of Action |
4.3 |
Efficacy and Prognosis |
4.4 |
Variations and Combinations of Methods |
4.5 |
Problems in Carrying Out the Treatment |
4.5.1 |
Individual Barriers |
4.5.2 |
Family Barriers |
4.5.3 |
Provider Barriers |
4.5.4 |
System and Setting-Based Barriers |
4.6 |
Multicultural Issues |
4.7 |
Summary |
5. Case Vignette |
6. Further Reading |
7. References |