Table of Contents

1. Description
1.1 Terminology
1.2 Definition
1.3 Epidemiology
1.3.1 Incidence and Prevalence
1.4 Course and Prognosis
1.4.1 Asthma
1.4.2 Cancer
1.4.3 Cystic Fibrosis
1.4.4 Diabetes Mellitus
1.4.5 Sickle Cell Disease
1.5 Differential Diagnosis
1.6 Comorbidities
1.6.1 Asthma
1.6.2 Cancer
1.6.3 Cystic Fibrosis
1.6.4 Diabetes Mellitus
1.6.5 Sickle Cell Disease
1.7 Diagnostic Procedures and Documentation
2. Theories and Models of the Disorder
2.1 Risk Factors
2.1.1 Disease and Disability Parameters
2.1.2 Genetic Disorders
2.1.3 Intrauterine Growth Retardation, Prematurity, and Low Birth Weight
2.1.4 Teratogens
2.1.5 Disease Severity
2.1.6 Functional Independence
2.1.7 Psychosocial Stressors
2.2 Resistance Factors
2.2.1 Intrapersonal Factors
2.3 Social-Ecological Factors
2.3.1 Family Functioning
2.3.2 Financial Resources
2.3.3 Stress Processing
2.4 Applying the Models to Sickle Cell Disease
3. Diagnosis and Treatment Indications
3.1 Caregiver and Child Interviews
3.2 Behavior
3.3 Cognition
3.4 Affect
3.5 Adherence
3.6 Stress and Coping
3.7 Quality of Life
3.8 Family Variables
3.9 Summary
4. Treatment
4.1 Methods of Treatment
4.1.1 Behavior Therapy
4.1.2 Cognitive-Behavior Therapy
4.1.3 Behavioral and Cognitive-Behavioral Interventions— Empirical Support and Clinical Trials
4.1.4 Psychological Adjustment
4.1.5 Psychosocial Factors, Coping and Pain Management
4.1.6 Adherence
4.1.7 Family Systems Interventions
4.1.8 Parent Training
4.1.9 Group Therapy
4.1.10 Peer Group Interventions
4.1.11 Peer Support Groups
4.1.12 Electronic Peer Support Groups
4.1.13 Self-Regulatory Skill Training, Self-Management, and Psychoeducational Strategies
4.2 Mechanisms of Action
4.3 Efficacy and Prognosis
4.4 Variations and Combinations of Methods
4.5 Problems in Carrying Out the Treatment
4.5.1 Individual Barriers
4.5.2 Family Barriers
4.5.3 Provider Barriers
4.5.4 System and Setting-Based Barriers
4.6 Multicultural Issues
4.7 Summary
5. Case Vignette
6. Further Reading
7. References